Practice Makes Perfect

Intro…

  • Write out a care plan for your loved one listing relatives or other people who know how to feed and care for them.  Keep a copy in a safe place in your home, your car and place a copy in your “Go Bag.” 
  • Decide on a place away from your home for family members to gather in the event that you are separated without phone service.
  • Act out a “Shelter in Place” situation and see how quickly you can move to a safe area and assess if your equipment fits.  During a tornado emergency, the safest place to shelter is often in a basement but this is often not realistic for a person who uses a power wheelchair or someone who has difficulty navigating stairs.  Make sure you know how long it takes you to move to the safest place in your home or in the community and have a backup plan. 
  • Find out where accessible community weather shelters are located. Research community resources that provide transportation or assistance to people with disabilities during inclement weather and keep those numbers saved on paper and in your phone.
  • Within your home, map out the safest route in your walker or wheelchair. 
  • If you have a service pet, make sure you train them for inclement weather scenarios specific to your area.  
  • Consider purchasing an inverter so that you can plug any necessary electric device into your car if the power is off for several days.

Be Informed

One of the best things you can do to keep yourself and the ones that you care for safe during a weather emergency is to be informed about weather patterns in your area.  Watch for developing weather regularly and BE INFORMED.  Download your local weather app to stay informed about developing weather in your area.

In the Central Alabama area, download ABC 33/40.

For more information, visit:

What to do during a tornado disaster from Healthy Children

Be Informed

One of the best things you can do to keep yourself and your loved one safe during inclement weather is to be informed about the weather patterns in your area and to educate yourself on the unique issues you need to be aware of. 

Watch the weather on the news regularly or online so you always know what is coming.  Research community resources that provide aid/relief during and after inclement weather/natural disasters.

For more information on disaster preparedness, check out:

American Red Cross

Disability Checklist for Emergency Preparedness

Ready to Roll

FEMA

Prepare a Go Bag

In the event that you have to evacuate due to inclement weather, prepare a Go Bag. You might want to consider having a bag packed and placed in a closet so that it is always ready to go.  You can pre-pack some items but for others make a list and leave it in the bag so that you can pack quickly under a stressful situation.

Things To Include

Please note that this list attempts to be as comprehensive as possible. Please assess your individual situation and prepare accordingly. It must be noted that not everyone has access to everything on this list nor does everyone have access to a support system to help. Also, if applicable, make sure that the bag you compile is maneuverable by you or your disabled family member in addition to your support people (e.g., family members or friends). Remember, at the end of the day, do what you need to do to stay alive.

  • You can have non-perishable items already in it and a list of perishables so you can pack it quickly in an emergency. Include things like saline and pet food. This includes food that is non-perishable, light weight, high calorie, and that is easily prepped.
  • Bottled water.
  • Accessible water bottle (if applicable).
  • Straws (if applicable).
  • Accessible eating utensils.
  • Extra clothes. (Weather appropriate! Layering can help too)
  • Necessary toiletries, hand sanitizer or alcohol swab
  • Rain gear (poncho, rain jacket, water resistant or waterproof pants, etc.
  • Ziploc bags.
  • Identification.
  • Copy of the Care Plan.
  • Pen and paper.
  • Heavy duty tape.
  • Implanted device cards.
  • Medication.  Keep a list of all current medication and update it often.  This will help you to quickly grab what you need.
  • Necessary medical equipment.
  • Transfer boards or equipment
  • Wound care supplies or supplies needed for ostomy or urostomy bags.
  • Incontinence supplies (Catheters, Diapers, Wipes (Both for toiletry use and hand sanitization), etc.)
  • Supplies for your service animal: food, harness, medications, weather gear.
  • G-tube supplies: saline, extra tubing.
  • Equipment needed for manual wheelchairs such as spare cushions, air pump, or replacement tubes.
  • Chargers for power wheelchair, AAC devices and other necessary medical equipment.
  • Small tool bag with the essentials such as allen wrench set, bearings, or small wrenches, etc.

If you have to evacuate:

  • Consider attaching the g-tube extender to your loved one’s shirt so that you can easily feed them on the road if you have to leave quickly. 
  • You can also place several diapers on a person who is incontinent and pull off the inner one to quickly change while on the road.

Make a Plan

Often when a weather alert is issued, people have no shortage of available information on where and how to get to a safe place but what about when you or your family member has a physical disability that makes it difficult to walk without assistance? What if they use a large, motorized wheelchair? What if they have many essential pieces of equipment that have to come with them? What do these people do?

If you or your family member fits into any of these categories, the first thing you have to do is plan ahead. You don’t have the luxury of waiting until the last minute to figure out how to navigate safely to a place of safety. You have to plan for a potential scenario where you may have to move quickly to a specific area or evacuate for several days.

 In the chaos of an emergency, you could be separated from your family members. If you, or they, are non-verbal or have physical and medical issues, this can increase one’s risk.  With proper planning you can decrease the risks and increase the chances that you or your loved one is kept safe.

Getting Started

  • Make a list of all the medications with names and dosages and include the names and prescribing doctors.
  • When, and if possible, consider what medications can be stockpiled. Additionally, this includes oral medication if you have something like a baclofen pump. Please keep in mind that this is not always doable due to insurance and drug regulations. Also, make sure that the medication is not expired!
  • When possible, create an equipment stockpile of small items that can be quickly grabbed and stashed in your go bag when necessary or ahead of time (for example, manual wheelchair tire tubes, a portable air pump, stoppers for crutches, or diabetes pump supplies).
  • If possible, acquire a bag that is waterproof or otherwise will provide some protection to the items inside.
  • Make sure that the clothing is weather and season appropriate.
  • Consider purchasing a “Medical Alert” identifying bracelet or necklace for any non-verbal person which lists their name as well as their medical conditions. 

More Preparation

Child and caregiver with dog sheltered in bathroom
  • Write out a care plan for your loved one, listing relatives or other people who know how to feed and care for them.  Keep a copy in a safe place in your home, your car and place a copy in your “Go Bag.”
  • Decide on a place away from your home for family members to gather in the event that you are separated without phone service.
  • Act out a “Shelter in Place” situation and see how quickly you can move to a safe area and assess if your equipment fits.  During a tornado emergency, the safest place to shelter is often in a basement but this is often not realistic for a person who uses a power wheelchair or someone who has difficulty navigating stairs.
  • Make sure you know how long it takes you to move to the safest place in your home or in the community.
  • Find out where accessible community weather shelters are located. Research community resources that provide transportation or assistance to people with disabilities during inclement weather and keep those numbers saved on paper and in your phone.
  • Within your home, map out the safest route in your walker or wheelchair.
  • If you have a service pet, make sure you train them for inclement weather scenarios specific to your area.
  • Consider purchasing an inverter so that you can plug any necessary electric device into your car if the power is off for several days.

 

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Prepare a Go Bag

In the event that you need to evacuate due to inclement weather, prepare a Go Bag. The Go Bag is a specific bag that is dedicated to emergency use only. This is customizable based on your needs. The idea of the Go Bag is to have a bag prepared with some items with room to put in last minute items quickly to move to your safe place.

  • Helmet 
  • Cell phone
  • Fidget toys, comfort toys/items
  • Emergency contact list
  • Medications 
  • Purse/wallet 
  • Communication device/system
  • Shoes
  • Headphones

If your child/student uses a communication device, remember to take it. If you or the person in your care uses a communication device, remember to take it with you.  It’s important to communicate using a means that is familiar.  This could include communicating that change is happening, you are moving to a safe place, and to remain calm.

Here are some resources that discuss what we need for a Go bag, and how/why we create a Go bag:

Be Prepared for Anything! by SciShow Kids

Emergency Supply List by FEMA

“Go” bag example

Prepare a Go Bag

Whether it is a tornado or a fire, you will need to have some essentials ready. The Federal Emergency Management Agency has a great template to help you get started with making a plan. This is a general template that anyone can use.

If you prefer, this video of Emergency Preparedness Tips is presented in Sign Language.

No matter the type of emergency, there are a variety of items your household may need, however, there are common items you will need in every emergency. BUILD YOUR KIT NOW. You may not have time to gather the supplies you need when an emergency happens.

Tap here for a video in sign language of items to include in your emergency preparedness kit.

You should gather and make copies of important family documents such as proof of identification, proof of medication (can take a picture of the Rx bottle) insurance policies, service animal records, and cash money in a waterproof container. You can make copies and scan them to a jump drive or make copies and put them in a waterproof bag in your Go Bag. In addition to the items listed above, you may also need the following:

  • Helmets to protect your heads
  • Shoes
  • Comfort/fidget toys and favorite books, games
  • Water (one gallon per person per day for 3 days)
  • Food (at least a three-day supply of non-perishable food)
  • Protein bars
  • Nuts
  • Crackers
  • Weather Radio and extra batteries
  • Flashlight and extra batteries
  • First aid kit
  • Whistle
  • Extra clothing
  • Coat or jacket
  • Hearing aid batteries
  • Sunglasses
  • Mobility cane
  • Note pad and pen – black, thick, felt-tip pen with white paper
  • Supplies for toileting/diapering
  • Extra glasses and hearing aids – if available
  • Food, water, and medicine for service animal

If you or a family member has a unique communication style or mode, it is a good idea to include instructions describing how to communicate with the DeafBlind person in case of separation. You may want to print out a disaster preparedness word board and make it accessible in braille if necessary. 

To make communication cards, simply write information or questions on index cards so a sighted person can read them, laminate them, then emboss the information using a braille labeler. Stick the labels to the back of the laminated cards. This can also be done with pictures for non-verbal persons to let their needs be known. If you punch a hole in the corner of the stack of cards, a key ring or zip tie could be used to secure them together.

Does anyone in your household have a chronic health condition? Do they have or need a medical alert bracelet? You can find out more from Med Alert Foundation here.

Make a Plan

Having a plan is crucial to making sure you and those you love are safe during any emergency. Taking time to make this plan with your family is a great way to get everyone involved. Share this plan with others in your life or community; they need to have a plan as well.

What will you do? Where will you meet? Have you picked a place in your home to go and stay for protection? Do you have important phone numbers where everyone can access them? How will you let family members know you are okay? What will you do with your pets if you have to evacuate your home? Does your local emergency management agency have a registry for those with functional and access needs?

These are just a few of the questions you will need to answer to be prepared for any emergency. For an emergency preparedness plan in sign language, check out this video from the Arizona Division of Emergency Management.

Choose your safe place and make sure everyone knows where to go. In the event of a tornado, your safe place would be a small interior room with no windows on the lowest level of your home. Practice the plan by having a family tornado drill – especially during tornado season. But what if the emergency is a fire? Choose a designated spot for everyone to meet once they evacuate the home. That way, if everyone is there, there will be no need to re-enter the home to look for family members. That is very dangerous and could cause unnecessary injury or death.

Be Informed

Living in Alabama, the greatest weather emergency we have to deal with is a tornado.  Perhaps you have experienced a tornado watch or warning.  Maybe you’ve had tornado drills at school.  If there is a threat of an actual tornado near your home, do you know what to do?  Does your family have a plan? 

This video from the Texas Department of State Health Services in sign language explains how to prepare for a tornado.

Pay attention to the weather.  Know when tornado season happens.  It is very important to have a weather alert radio.  A Midland NOAA weather radio is a good choice.  It will even alert your family even when you are asleep.  NOAA weather radios can be found at your local Home Depot, Best Buy, online at www.midlandusa.com, and many other retail stores.

Practice Makes Perfect

Practicing elements of emergency preparedness could be key for individuals with ASD.  Practicing not only allows those that you care for to learn how to respond in an emergency but also allows you to recognize specific elements in which you need to be prepared.  Walk through the action of getting to your safe space from any part of the home. It is important to walk through this process calmly and explain what is going on as you are practicing.  

  • Take pictures while you’re practicing getting to your safe place and create your own story that is personalized to your situation. 
  • Taking a video while practicing can also be an important tool.  This can be shown at different times to the others to help prepare and to be discussed.   Be sure to include each step with the necessary materials you would use during the emergency. Spend time in non-emergency situations with a person with ASD and discuss these photos, stories, and videos to further prepare.  
  • Practice interrupting activities or routines so that individuals with ASD will be more apt to stop an activity in an emergency. 
  • Prepare visual supports to help communicate the expectation during an emergency.   Consider using photographs of your safe space or picture symbols that represent the safe space when practicing how to get there.  
  • Practice remaining calm when having to interrupt activities or go somewhere that is not in the routine.  Remaining calm during practice and a true emergency is crucial. 
  • Practice wearing a helmet by making a game out of it, customizing helmets with decorations/art.

Social Stories

Here is a great resource to watch with children to understand why we need to be prepared during an emergency:

How To Stay Safe During Unsafe Events by Autism Speaks

Handling Emergencies by Sesame Street

Emergency Helpers

It is beneficial to discuss emergency personnel with individuals with ASD before an emergency. Discuss how firefighters, law enforcement, paramedics, and first responders might help in an emergency.  Consider contacting your local fire station before an emergency to discuss special needs in your home and inquire about visiting.  Consider watching videos about first responders to see what they wear, how they may sound and how they help. 

Need help reviewing emergency personnel? Try some of these resources:

Emergency Helpers by Sesame Street

Interacting with Law Enforcement by Autism Speaks